go back

BENEFIT FOR ADRIANA'S BONE MARROW TRANSPLANT


TUESDAY 23 MARCH

Adriana van der Merwe is a 7 year old girl, living in Johannesburg, South Africa. On September 9th, 2002 Adriana was diagnosed as having SCID - severe combined immunodeficiency caused by purine nucleoside phosphorylase (PNP) deficiency .

SCID (PNP) deficiency is a very rare genetic disease, initially described in 1975; since then 32 other patients with the disorder have been documented. Since this disease is very rare, not much is known about it.

Adriana's doctor, Dr. Michael Loubser, (011 462-5580) stated the following in his assessment: "Long-term outlook and management
This is a very rare disease, less than 40 cases have been reported in the literature. Adriana is the 3rd patient with PNP deficiency that I have treated in the past 10 years. Unfortunately this disease carries a poor prognosis. Twenty nine of the 34 informative cases have died. Sixteen deaths were due to infections including three to chicken pox. Five were due to tumors (four lymphoma and one lymphosarcoma) and three died of GvHD following bone marrow transplantation."

The Benefit for Adriana's Bone Marrow Transplant

STARRING

GEORGE WORTHMORE AND THE DIVEBOMBERS
DAN PATLANSKY - BLUES DOT COM - RED HAND
AND SPECIAL GUESTS -TRYST

Doors open 7pm - Tickets R50 - Reserved table seating with dinner R150